GET YOUR NOSE! CAMPAIGN
We aim to bring rare diseases into the social consciousness by everyone standing together to support those living with a rare disease that they may realise a better future.
In doing so, we forge a path for further research, knowledge-sharing, treatments, and the creation of support networks to address the numerous challenges those affected face. Read More…
How You Can Get Involved!
Support the Black Nose campaign on Facebook. Send us your photo and you’ll get your Black Nose in return. Upload your “unique” photo to your Facebook profile and motivate your friends to follow your lead at the same time. Together we mobilise each other! Help us to spread the word! GET YOUR NOSE too!
2. Your contribution!
Each sponsorship and donation supports our work. We connect and mobilise children and families through our health promotion program, Little Orphan Elf (Elfen Helfen®). We research new therapies and offer coaching for patients, interested individuals and medical specialists. My Donation
3. Stay informed!
Sign up for our newsletter and stay up-to-date with everything that Black Nose motivates and mobilises. Newsletter
Thank you so much for your interest and engagement!
Nobel Peace Price Laureate Prof. M.Yunus supports our Black Nose campaign from Vienna
2 exciting days with working groups on Impact Business and impressive personal conversations – even with the Spanish Queen Sofia – emphasized the need for a change in economics, towards sustainable and compatible economics without high personalized profits.