Children’s book project
The book will provide 11 stories of 11 rare diseases, will come in different languages and provided through local distributer in EU, North + South America....
Projects
Little Orphan Elf Events
ELVES AND THE ELEFANT - our Patient Empowerment Program Event...
Little Orphan Elf Events
ELVES AND THE ELEFANT - our Patient Empowerment Program Event...
Friends of Foundation Orphanbiotec
Is the Foundation’s active organization of friends. Just think back to your childhood. What is the strongest feeling you remember? It is certainly the feeling of having the right boyfriend or girlfriend. Someone who stayed by you through thick and thin, and shared good tim...
Research project »Moyamoya«
The goal of our research project is to improve the diagnosis and provede a better treatment for Moyamoya. This requieres improved test methods (neurocognitive test) in a way that children play and learn while their brain functions and disorders are measured. This supports th...
Research project »mucosal cancer«
The objective of this research project is to develop an early diagnosis and treatment for mucosal cancers, which affect around 140,000 new people per year in EU. It's worth it!...
Research project »Amyloidosis«
The objective of this research project is to develop a new drug for the successful treatment of (AL-)Amyloidosis, which affect around 5,000 new people per year in EU. It's worth it!...
